Tuesday, September 12, 2006

A New Hope (part II)

Well, I feel a little anticlimactic writing this tonight... much of the excitement seems to have worn off... darnit when that happens! Ah well... I imagine I can muster up a little of the emotion I experienced (in waves, mind you) yesterday evening.

Well, for those who may not know what the hope I'm referring to entails, a brief synopsis would bring to light the following facts: I was diagnosed with multiple sclerosis in 2003; I have been seeing a neurologist who is a very kind person but not an MS specialist and is more than a little freaked out by my specific case (leaving me in a constant state of "freaked out" myself); I have had 7 or 8 significant relapses in less than 3 years and have taken powerful doses of (evil) steroids each time (and am, most likely, about to start on yet another bout... curses!); and I have spent the last few months attempting to find a neurologist specializing in MS.

Well, after said months of searching... and with the help of some amazing individuals (who will soon receive their very own written tributes)... I was referred by Dr. Elliot Frohman -- one of the number one MS specialists in the world, who just happens to live and practice in Dallas, but who is also severely over-booked and regrettably unable to take my case -- to a Dr. Ellen Marder. Dr. Marder, it turns out, has been practicing neurology -- with an emphasis in multiple sclerosis -- for some 20 years and is, more importantly, accepting new patients.

Fast forward to yesterday afternoon...
At 3:30pm on September 11, 2006, I met with my new neurologist for the first time... and consequently was presented with a hope I haven't experienced in almost three years. Dr. Marder spent half an hour asking me question after question (whereas my former doctor never seemed to ask me anything other than "how are you feeling?"... oh I don't know... "like crap. anything we can do about that?" sorry... my bitterness creeps out on occasion). Through her questions, Dr. Marder was able to draw conclusions about my case that even I hadn't previously considered. She also listened attentively as I expressed my frustration with the lack of care I feel I've received over the past few years and the depression and anxiety caused by my inability to do so many things I (not so long ago) loved to do.

She then spent the next half hour running through an extensive list of (several) possible treatment options (alternative to the one I've been prescribed over the last 3 years... and the one I long ago lost any faith in). She then asked me to come back in 3 weeks and promised we would stay in touch in the meantime. As I and my precious Mere (one of the amazing individuals who will receive a written tribute in the near future) got up to leave the office, Dr. Marder looked me in the eye and assured me that we will spend the next few months doing whatever it takes to bring me back to normal (and she said this with a sincerity that gave me a shred of faith -- one that I haven't previously known -- that this might just be possible).

Nothing tremendous has happened yet... I am still having difficulties with my vision... I still get dizzy if I look up or stand abruptly or turn my head too quickly... I still can't feel a darn thing in my left side... and I still randomly transition from sleeplessness to utter exhaustion. But in that moment... when my new neurologist (who actually seems to know what she's doing... and does what she's doing with a positive energy) said those words... tears threatened to betray the doubt I've carried since October 2003... and the hope I'm terrified to even consider embracing now.

12 Comments:

At 9/13/06 4:48 AM, Blogger Red said...

She sounds like an amazing woman, and I am so happy for you that you were able to connect with her on what seems to be more than a mere doctor-patient level.

It must be awful for you to learn that in the past three years you might have had to suffer as much as you did, had you had the appropriate level of care. But it's wonderful to hear you hopeful that those days might be behind you and that you might be able to go back to a normal life. I look forward to hearing about you getting ever stronger and ever better over the next few months!

Good thoughts speeding your way, as always.

 
At 9/13/06 11:06 AM, Blogger Martha Elaine Belden said...

thanks, red :)

 
At 9/13/06 12:55 PM, Blogger Adam said...

I'm excited for you, as this is great news to hear. I look forward to you returning full-throttle to posting beautiful words and perhaps - reviews, ha.

 
At 9/13/06 1:33 PM, Blogger Sara said...

little pirate i'm so glad that this doctor has been brought into your life. it's understandable the amount of frustration that you have had due to being stuck with care than was not specific to your needs. I am looking forward to seeing God heal your body.

 
At 9/14/06 12:22 AM, Blogger crackers and cheese said...

In response to your comment on Cara's blog: Somehow I had a feeling you might be a L'Engle fan :) and I bought The Illustrated Man from Half Price recently (it's rare if I leave that store without a Bradbury book) but I have yet to start it. I'm glad to hear it's one of your favorites - I look forward to reading it soon!

Also, feel free to know me as Kelly :) When I started my blog, I had intentions of being somewhat anonymous, so for names I just came up with the first thing that popped into my head. Silly, huh?

I'm so happy to hear about your new doctor - God is good! This sounds like a new beginning for you :)

~Kelly

 
At 9/19/06 7:18 PM, Blogger angelsarentfree said...

Oh my Martha, I had no idea you had gone through all that. I think I mentioned in a previous comment that I worked in a patient support center for two years for a pharmacuetical company that manufactured a drug to help slow down the advancement of MS on the body. One of the most frustrating and reoccurring themes for the patients I spoke with was neurlogists that were clueless about the disease. Many were so much happier once they were able to see one that specialized in the disease. I promise you, whatever path this new Doctor leads you on, ultimately you will end up feeling better. So many advancements have been made on the disease from earlier detection to better therapy options.
I am sure she will have you on the right path in no time. The most important thing is to stay positive and don't lose your faith! Negativity has bad effects on the immune system, ask any cancer patient. I know that is easier said then done, but please try. It's so key!
I will keep praying for you!

 
At 11/21/06 11:21 AM, Anonymous Charlene said...

Dear Martha,
You don't know me. I googled Dr. Ellen Marder and your blog came up in the results. I was diagnosed with MS about a month ago. Through a series of unbelievable events, I decided it was in my best interest to find (through whatever means available) a neurolgist that specializes in MS. My Bro-in-law works at NIH. He recommended Dr. Frohman, who, as my luck would have it, has closed his practise. His office recommended Dr. Ellen Marder. Can you tell me-after the last couple of months-has it been worthwhile for you and your health? Has your health improved? I have my appt. with my neurolgist Monday (the 28th) to go over best course of treatments. I'm nervous (ok-scared!) and am afraid of mistakes that can have a negative effect on me forever. I hate to be a bother but would so appreciate any words of wisdom.

 
At 2/28/07 3:57 PM, Anonymous Tina said...

Martha,

I am like Charlene...you don't know me and I also googled Dr. Marder and was directed to your website. I have been to a neurologist who really wants to add drug after drug to my diet without really telling me if I really do have MS or not. A friend of mine said I should see Dr. Ted Phillips but he is no longer seeing new patients. His office referred me to Dr. Marder and having been burned in the past, I am searching for someone who can comment on how good Dr. Marder is or not. Thanks for your posting and like Charlene, any information you have would help greatly! God Bless!

 
At 10/2/07 2:58 PM, Anonymous Anonymous said...

Hi Martha,

I was looking up Dr. Marder's # online and your blog popped up. My husband has been a patient of hers for 6 years and I just wanted to let you know that she is fantastic. We consider ourselves very lucky to have found her. Not only is she a true expert on MS but she also truly cares about her patients which is very rare in a doctor these days. I hope you are able to find the relief you are looking for - with Dr. Marder on your side I have no doubt you will.

 
At 12/9/07 8:19 PM, Blogger Martha Elaine Belden said...

oh my! i feel terrible that i didn't see these last three comments before now! i so rarely come back to these old posts, and just decided to read back a little.

i don't know what the likelihood is of any of you coming back to this... but if you do... please know... i LOVE dr. marder. she's been an incredibly attentive doctor and has done everything in her power to make me better.

i've been seeing her for a year and some months now, and i'd highly recommend her to anyone.

 
At 6/14/08 9:46 PM, Anonymous Anonymous said...

As other have said, you dont know me. did a google looking for Dr Marder's number and saw your blog. Actually read it and want you to know Dr. Marder is the most amazing Neuro i have ever seen. I have been with her for over a year now, after being refused for over 6mos by Frohman's office. Her attitude and CARING are amazing to me. I couldnt stop the depression, the anxiety, any of it, AND had a 10 month old at the time of my actual diagnosis. Stay with her. She is amazing and has changed my life with MS, to a NORMAL LIFE!

Sue Parsons

 
At 4/2/09 6:43 AM, Anonymous Anonymous said...

I am so glad you all are happy with Dr. MarderI however had a totally different experience with her that I hope nobody else has. I have 10 lesions in my brain and other tests are positive too, and she is not the only Doctor to confirm MS. When it was time to start a medication she gave me no information or insight to options at all but ask me if I knew which one I wanted to take, I didn't know I was supposed to have figured this out on my own before I went to her. I upon my second relapse in 3 months was asked by her "what do you think we should do about this?" Terrifying question coming from your specialist and someone you need to guide you in this frankly scary time in your life no? I pray for each of you that your experiences continue to go well with her, I don't know, maybe we got off on the wrong foot. My husband wasn't too keen on her for whatever reason and let it be known and put me in a bad spot from day one, not fair to my care if you ask me, but non the less, I am not sure what went wrong but I never had these great experiences with Dr. Marder. My heart and thoughts are with each and every one of you as well as with Dr. Marder. I pray you all stay strong and do well. A great doctor and a determined patient make a great team for a healthy future!!

 

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